"Find the Other 150" Campaign
Progeria, a rare, fatal, rapid-aging disease, is taking
the lives of children around the world. All children with Progeria die of heart
disease (heart attacks and strokes) at an average age of 14 years. The Progeria
Research Foundation is on a mission to cure Progeria. With your help, every child
in the world can benefit not only when the cure is found, but also NOW from the
advances the foundation has made. When this campaign launched
in October 2009, the foundation knew of only 54 children, thus they have seen a
tremendous and unprecedented increase thanks in large part to these awareness
efforts. These children and their families and physicians are benefitting
from the programs offered by The Progeria Research Foundation, including
clinical trials that have resulted in treatments that are giving the children
stronger hearts and longer lives. But statistically, experts believe there are another 150 – 200
children worldwide living with Progeria that have not yet been diagnosed
or identified.
The “Find the Other 150” campaign is designed to do
exactly that:
“Search globally for the undiagnosed children with Progeria so that
they too can have access to the unique care they need, and help advance
clinical science for Progeria”. In partnership with
GlobalHealthPR, a worldwide health communications group with offices in the
United States, Asia, Western Europe and Latin America, The Progeria Research
Foundation (PRF) launched this campaign to proactively search for these
children.
What
you can do?
If someone you know or a patient you treat has
Progeria-like characteristics, please contact us at info@progeriaresearch.org
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